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In page Casa Sollievo della Sofferenza:

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This biobank at Casa Sollievo della Sofferenza was established in 2006.[1] In 2009, it became a member of Telethon Network of Genetic Biobanks, and RD-Connect International Community for rare diseases. It has a well-annotated internal database of clinical and longitudinal data and biological samples for multiple genomic disorders, genetic and Mendelian diseases.[1]